Thursday, 20 June 2024 12:45

Local Fundraiser Set for June 30 in Saratoga Springs

The Bernath Family. Photo provided The Bernath Family. Photo provided

SARATOGA SPRINGS — Ashley Bernath, then known as Ashley Johnson grew up in Saratoga Springs and today makes her home in Massachusetts with Ryan Bernath and their two daughters. 

Last October, the Bernaths’ then three-month-old daughter, Lucy, developed COVID and was admitted to a Massachusetts hospital with respiratory distress. While at the hospital, the girl developed Gastroparesis, a feeding aversion, and a secondary respiratory illness that required extended hospitalization. 

Lucy, whom is nicknamed “Little Lulu,” remained in the hospital until December, when she received a gastrostomy tube. Today, she is still nourished via feeding tube and requires full-time attention and the support of the Mass General Hospital Aerodigestive team, but is doing better. 

The Bernaths were finally home with their two girls, and feeling like they could see the light at the end of a dark tunnel.

This past May, after a few days of limping around the house, Ashley and Ryan’s older, 2-year-old daughter Charlie went to get X-rays for an injured foot. What was found instead was a broken femur. Less than a day later, a doctor announced the diagnosis of Acute Lymphoblastic Leukemia. Two-year-old Charlie has cancer. 

A site was created to help with the expenses that will be accumulated over the coming months, and a posting on the fundraising platform Spotfund set $150,000 as a goal. To date, more than $120,000 has been donated. (For more on this, go to: spotfund.com and type The Bernath Family in the search box). 

A local fundraiser will take place from noon – 5 p.m. Sunday, June 30 at King’s Tavern on Union Avenue in Saratoga Springs. For reservations, call 518-441-1103. 

Contributions will go toward Little Lucy’s many doctors visits, (physical therapy, weekly nurse visits, and monthly visits at MGH to maintain weight and strength) in addition to the enormous financial burden the Bernaths will soon face in the wake of Charlie’s Leukemia diagnosis.

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